Part 2 – Acceptance, Healing and Skills: CP Block Week
Our final cerebral palsy Block Week for the year welcomed six children and their guardians daily. Cerebral palsy is a neurological disorder that affects muscle movement and coordination, and it can vary in severity.
The week was not only about learning new techniques and strategies but also about emotional growth. Guardians like Nokwe, whose son has cerebral palsy, shared how acceptance of her child’s condition has profoundly transformed her ability to provide support. One grandmother spoke through tears, expressing how, after a long time of uncertainty, she finally understood her grandson’s condition. She revealed how she had previously blamed witchcraft and felt isolated, but now, she knew the truth. “I feel like I understand him now. It’s not witchcraft or blame. It’s just the condition he has, and I can support him,” she said.
The activities throughout the week were designed to provide practical support and knowledge. Guardians learned about correct positioning techniques for feeding and mobility, which are crucial for reducing contractures and increasing mobility. One mother proudly shared, “I feel so confident to know that what I’ve been doing for my child is correct. I’m so happy when the doctor told me that my feeding is amazing and the position I use when feeding my child is good. I feel appreciated.”
Another key part of the week involved playtime activities. One of the engaging activities was making a mobile for visual stimulation, which helps children with cerebral palsy develop tracking skills and engage more in their environment. The parents were actively involved in the process, learning how to create these stimulating play tools to use at home.
Communication was another vital area of focus, especially for children who are less verbal or non-verbal. Guardians were given tips on alternative communication methods, such as using visual aids and sign language, to better connect with their children and understand their needs.
The week also provided practical guidance on the use of assistive devices and positioning apparatus, including splints, wheelchairs, and standing frames. Families were shown how to properly use these devices alongside exercises to promote their children’s comfort and mobility. A mother of one of the children shared her joy when she saw how much her child benefited from proper positioning: “I’m happy now. I’ll make sure to do the kneeling position exercises with my son to help stimulate his tummy and hips. I’m so happy to see the difference it’s making.” she said.
Read more: Part 1 – Tailored Interventions, Tangible Progress or Part 3 – Stories of Resilience: ASD Block Week.
Thank you to every guardian, therapist, and supporter who made these Block Weeks possible in 2024. For more information on our interventions or how you can support our work, please contact [email protected].