Elizabeth’s Story: “Asiphe is like all other children”

Asiphe*, an 11-year-old girl from KwaNzimakwe, has faced significant challenges due to her diagnoses of microcephaly, global developmental delay (GDD), epilepsy, and ataxia. Throughout her journey, she has been lovingly supported by her 62-year-old grandmother, Elizabeth, who has been her steadfast guardian and caregiver since she was a baby.

From the very beginning, Elizabeth noticed that Asiphe’s progress and development were slower than expected. As a grandmother, the worries began to mount, especially after Asiphe celebrated her first birthday without achieving typical milestones. When Asiphe turned three, she took her first steps, which was a moment of joy; however, this progress was soon overshadowed by challenges, including frequent seizures and, later, a stroke.

Despite facing lack of support from other family members, Elizabeth embraced her role as Asiphe’s primary caregiver, dedicating herself to providing her granddaughter with the love and attention she deserves. Their bond grew stronger through the challenges, but Elizabeth often felt isolated in her struggles. During a recent visit to their home, she remembered her feelings of inadequacy and loneliness: “Before joining Siyakwazi, I felt ashamed and as if I wasn’t loved.”

In 2013, Siyakwazi began supporting Asiphe, then just a year old, through interventions from the Inclusion Programme. For over a decade, the programme has worked to empower children with disabilities and their families, offering essential services such as therapy, assistive devices, and tailored support plans to promote holistic development. For guardians, the team also offers much-needed emotional support through counselling services, support groups, and home visits.

Through this programme, Asiphe received not only physical care but also emotional support, which helped Elizabeth find renewed hope and strength during some of her darkest days. “Siyakwazi showed Asiphe so much love; it helped me grow love for her too. They gave me hope. Asiphe is like my own child now. I understand her better than anyone. I fear being apart from her might make me sick,” Elizabeth admitted. This nurturing environment has allowed both Asiphe and Elizabeth to thrive.

One of the key components of the Inclusion Programme which was introduced in 2023 is the Respite Learn & Play initiative. This additional support  has become invaluable for Elizabeth as Asiphe gets older. This initiative provides vital relief for caregivers, allowing them to recharge while ensuring that children are engaged in a safe and supportive environment. “I’m so happy that Asiphe attends Respite. It gives me time to work in my garden. I grow amadumbe, and when they’re ready, I harvest and sell them. I wish there were more days for Respite,” Elizabeth expressed, highlighting the importance of having time for herself to manage her own health and wellbeing.

Despite her own health challenges, Elizabeth remains a dedicated caregiver for Asiphe. She no longer hides her granddaughter’s disability, instead proudly taking her everywhere in their community. “Siyakwazi taught me that Asiphe is like all other children. I don’t hide her anymore.”

With Siyakwazi by her side, Elizabeth knows she’s not alone on this journey. The support she has received has not only changed her perspective but has also empowered her to advocate for Asiphe and embrace their unique journey together.

*Name changed for safeguarding and privacy.